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Educating the public

We are creating awareness by being on the news, shows, and social media networks. We are filming a documentary, writing articles, and are involved with advocacy groups. We meet with congressmen and women to represent BORN A HERO and encourage legislation that will benefit the Pfeiffer’s and Rare Disease patients. We attend conferences and speak on behalf of our Pfeiffer’s community.  We are hosting an annual event to raise public awareness on different rare medical conditions. We are organizing library events/story times to teach kids to celebrate differences. We believe in the power of words and we are fighting to change the way the term ‘special needs’ is used.
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(“Content”) are for informational purposes only and do not constitute medical advice; the Content is not intended
to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of a physician
or other qualified health provider with any questions you may have regarding a medical condition. Never disregard
professional medical advice or delay in seeking it because of something you have read on this website.

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