We are creating awareness by being on the news, shows, and social media networks. We are filming a documentary, writing articles, and are involved with advocacy groups. We meet with congressmen and women to represent BORN A HERO and encourage legislation that will benefit the Pfeiffer’s and Rare Disease patients. We attend conferences and speak on behalf of our Pfeiffer’s community. We are hosting an annual event to raise public awareness on different rare medical conditions. We are organizing library events/story times to teach kids to celebrate differences. We believe in the power of words and we are fighting to change the way the term ‘special needs’ is used.