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BORN A HERO NEWS

WHAT WE ARE DOING

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    Mission Statement

    Our Mission is to EMPOWER kids with Pfeiffer Syndrome. We want to FIGHT for a cure. We STRIVE to educate the world so people RECOGNIZE the HERO that lives in each Pfeiffer’s child.

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    What is Pfeiffer Syndrome?

    Pfeiffer Syndrome is a rare genetic disorder which causes bones to fuse prematurely or extra bones to grow in different parts of the body, including the skull.  There are three forms of Pfeiffer Syndrome, based on severity.  Type I, considered mild, does not typically impact mental capacity.  Types II and III often involve problems with the nervous system and can cause damage leading to a decreased life expectancy.

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Empowering kids/patients with Pfeiffer Syndrome

 

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Fighting for a cure

 

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Educating the public

 

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Recognizing the hero in each child/patient

 

Upcoming and Recent Events

UPCOMING AND RECENT EVENTS

BORN A HERO, Member Organizations




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